Family Resources
Find out more about HNRNPH2 and related neurodevelopment disorders!
Foundations
The Yellow Brick Road Project
The Yellow Brick Road Project is a nonprofit foundation supporting research, awareness, and community for individuals and families affected by HNRNPH2-related neurodevelopmental disorders. Its mission is to accelerate understanding, treatment, and hope for those impacted by this rare genetic condition. Learn more here.
n-Lorem
n-Lorem Foundation is a nonprofit that develops and provides personalized experimental antisense oligonucleotide (ASO) medicines to treat individuals with ultra-rare “nano-rare” genetic diseases — offering these bespoke treatments charitably, for free and for life. Learn more here.
Rare Genomics Institute
Rare Genomics Institute is a nonprofit organization that helps patients and families affected by rare diseases access genetic sequencing, research tools, and expert support to better understand and ultimately find treatments for their conditions. Learn more here.
One Rare
One Rare is a nonprofit organization dedicated to improving the lives of young adults (ages 18–35) living with rare diseases by providing education, mentoring, recreation, and peer support to help them thrive in adulthood. Learn more here.
CureGRIN
CureGRIN Foundation is a parent-led nonprofit organization dedicated to improving the lives of people and families affected by GRI Disorders (caused by variants in GRIN, GRIA, GRID and GRIK genes) by driving research, education, and collaboration toward effective treatments and cures. Learn more here.
HNRNP Family Foundation
The HNRNP Family Foundation is a nonprofit dedicated to improving the lives of people and families affected by HNRNP-Related Neurodevelopmental Disorders by driving patient-centered research, fostering education, and building a supportive, neurodiverse-affirming community. Learn more here.
The DAND Alliance
The DAND Alliance is a nonprofit dedicated to research, awareness, and support for individuals and families affected by DEAF1-Associated Neurodevelopmental Disorders. Its mission is to advance understanding and improve outcomes for those living with this rare genetic condition. Learn more here.
To Cure a Rose
To Cure A Rose Foundation is a nonprofit dedicated to developing genetic treatments and support for children affected by HNRNPH2 and other ultra-rare genetic diseases. Its mission is to accelerate research, awareness, and therapeutic innovation so families like Rose’s have real hope for better outcomes. Learn more here.
GRIN2B
The GRIN2B Foundation is a parent‑run nonprofit advancing research, awareness, and support for families affected by GRIN2B‑Related Neurodevelopmental Disorder. Its mission is to foster community, fund scientific progress, and empower individuals and caregivers impacted by this rare genetic condition. Learn more here.
Patient Resources
The Yellow Brick Road Project
The Yellow Brick Road Project is a nonprofit foundation supporting research, awareness, and community for individuals and families affected by HNRNPH2-related neurodevelopmental disorders. Its mission is to accelerate understanding, treatment, and hope for those impacted by this rare genetic condition. Learn more here.
n-Lorem
n-Lorem Foundation is a nonprofit that develops and provides personalized experimental antisense oligonucleotide (ASO) medicines to treat individuals with ultra-rare “nano-rare” genetic diseases — offering these bespoke treatments charitably, for free and for life. Learn more here.
Rare Genomics Institute
Rare Genomics Institute is a nonprofit organization that helps patients and families affected by rare diseases access genetic sequencing, research tools, and expert support to better understand and ultimately find treatments for their conditions. Learn more here.
One Rare
One Rare is a nonprofit organization dedicated to improving the lives of young adults (ages 18–35) living with rare diseases by providing education, mentoring, recreation, and peer support to help them thrive in adulthood. Learn more here.
CureGRIN
CureGRIN Foundation is a parent-led nonprofit organization dedicated to improving the lives of people and families affected by GRI Disorders (caused by variants in GRIN, GRIA, GRID and GRIK genes) by driving research, education, and collaboration toward effective treatments and cures. Learn more here.
HNRNP Family Foundation
The HNRNP Family Foundation is a nonprofit dedicated to improving the lives of people and families affected by HNRNP-Related Neurodevelopmental Disorders by driving patient-centered research, fostering education, and building a supportive, neurodiverse-affirming community. Learn more here.
The DAND Alliance
The DAND Alliance is a nonprofit dedicated to research, awareness, and support for individuals and families affected by DEAF1-Associated Neurodevelopmental Disorders. Its mission is to advance understanding and improve outcomes for those living with this rare genetic condition. Learn more here.
To Cure a Rose
To Cure A Rose Foundation is a nonprofit dedicated to developing genetic treatments and support for children affected by HNRNPH2 and other ultra-rare genetic diseases. Its mission is to accelerate research, awareness, and therapeutic innovation so families like Rose’s have real hope for better outcomes. Learn more here.
GRIN2B
The GRIN2B Foundation is a parent‑run nonprofit advancing research, awareness, and support for families affected by GRIN2B‑Related Neurodevelopmental Disorder. Its mission is to foster community, fund scientific progress, and empower individuals and caregivers impacted by this rare genetic condition. Learn more here.